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Suneel’s Light Foundation’s Night to Shine Charity Event to Help Discover a Cure for Duchenne | Business

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Suneel’s Light Foundation’s Night to Shine Charity Event to Help Discover a Cure for Duchenne
Suneel’s Light Foundation’s Night to Shine Charity Event to Help Discover a  Cure for Duchenne

Charity event set to shine brightly on Park Country Club November 4th with Congressman Collins and his wife as honorary chairs 

Suneel’s Light Foundation has announced that the Night to Shine charity event, the research foundation’s 2017 fundraiser, will “shine brightly” upon Park Country Club, 4949 Sheridan Drive, Williamsville on Saturday, November 4 from 6 pm – 9:30 pm in the club’s storied ballroom. The local non-profit foundation has the sole mission of raising funds for genetic research that will lead to a cure of Duchenne Muscular Dystrophy (DMD) and to increase public awareness of the genetic disorder.

The charity event’s honorary chairs are Congressman Chris Collins and his wife Mary Sue, because they both have been champions to advance medical treatments for diseases like Duchenne and while doing so, have saved thousands of lives and given millions a better quality of life. Congressman Collins also fought for passage of the 21st Century Cures Act, landmark medical innovation legislation that directly benefits the lives of Western New Yorkers and those across the country by accelerating the discovery, development, and delivery of new and life-altering treatments by easing the requirements put on drug companies looking for FDA approval on new products or new indications on existing drugs.

Suneel’s Light’s Night to Shine invites the community to enjoy a unique evening featuring three of the region’s top distilleries, including Southern Tier, Buffalo Distilling Co. and Lakeward Spirits, who will be competing for the best “signature cocktail” of the evening. Attendees will vote on and winner will be announced at the end of the charity event. Guests will also be able to spend an evening mingling with community leaders and world renowned advocates and researchers from across the globe who are on the front lines advancing treatments for Duchenne. The evening will also include the opportunity to mingle with local celebrities from the worlds of science, media (including Maryalice Demler of WGRZ), sports, entertainment and politics, while enjoying delectable fare and delicious cocktails as delightful live music fills the ballrooms with light, classical favorites.

Night to Shine will feature spectacular benefit auctions with items from both the Buffalo Bills and Buffalo Sabres, as well as numerous items from some of WNY's favorite restaurants, shops and companies. The event will conclude with a professional auctioneer holding a live auction of fabulously unique auction items. Attendees will also be able to participate in a first-class silent auction and a raffle for themed packages, such as technology, sports and wine, etc.  All proceeds from the entire event going towards finding treatments and a cure for Duchenne Muscular Dystrophy. Tickets for the event are $100 per person. For more information on the 2017 Night to Shine or to purchase tickets or make a donation, please visit www.suneelslight.org or call (716) 243-0882.

Established in 2002, Suneel's Light is a charitable foundation whose namesake is a young man from Amherst, NY who lives with Duchenne Muscular Dystrophy.  The Foundation was established to fund critical research for treatments in search of a cure for Duchenne Muscular Dystrophy, the most lethal genetic childhood disease, which targets mainly young boys, without regard to ethnicity, and leads to death from respiratory or heart failure by their early 20's.  Without a breakthrough in ongoing medical research and treatment, there is little hope that Suneel and other children like him, will live to adulthood. 

At present, more than 20,000 children in the United States suffer from this fatal disease, and more than 100,000 worldwide, with a statistically higher number of identified cases in Western New York than the national average.  Typically during their school-age years, in addition to the physical challenges surrounding this disease, they suffer from learning disabilities, social isolation and behavioral issues as well. Symptoms usually appear in male children before age six and may be visible in early infancy. Progressive muscle weakness of the legs and pelvis associated with a loss of muscle mass is observed first. Eventually this weakness spreads to the arms, neck, and other areas.

For more information about Suneel’s Light or Duchenne Muscular Dystrophy, please visit www.suneelslight.org or Facebook.com/suneelslight.


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